I’ve read things literally my whole life. Hold up. Let me rephrase that. Actually, let me point out how that is a perfect opening statement for this piece I’m trying to write about life as a literalist. Everything is wrong with this sentence, if I pick it apart. Not literally everything, though the case could … Read more
A Reading List in the Spirit of Tōjisha-Kenkyū · 当事者研究 Within Tōjisha-kenkyū lies the potential of rearranging the relationship between the tōjisha (the person with lived experience of the condition being studied) and the specialist — in other words, between experienced knowledge and specialized knowledge. . . . The mutual respect from the tōjisha and … Read more
I’m not sure we should even be studying autism in the United States. My mother just turned 82 today. She has faced challenges in every measurable area of her life, that I won’t go into—that’s a different story. Her diagnosis has changed with the trends of the healthcare industry, and she has only recently been … Read more
here’s the thing that’s so hard to reconcile as i move into the last third of my life: as much as i appear to my peers to overshare about my inner life, i feel like a tentative teenager when i consider the world i thought i would find myself in as an adult human, growing … Read more
Let’s take a moment to say something out loud:there’s a lot of terrible writing in the world;and a lot of terrible writing is one of the reasonsmany of our kids are not excited to sit and squint and parse, under fluorescentlighting, at desks that wreck their bodies, in rowsof kids, not allowed to wiggle or … Read more
When a child grows up in an environment where there is only one source of support, and that source of support is unpredictable, unstable, and capable of harm, the child’s identity becomes tied to that of the person they rely on. They may learn that if they go along with their caregiver, their needs will … Read more
He was probably a university student, or a post-doc, or maybe already a professor. He was probably married and probably had a new child at home, (and might have even had an idea of what university he hoped his child would attend). He was probably an only child, or if he had siblings, was probably … Read more
all the little things you do are done for love. don’t doubt it. shout about it. shout about the things you do for love. (it’s about the little things) little things are moved toward love. (If you are moved, move the little things toward love) love this, sweetie lovethislovethislovethislovethislove