I’ve read things literally my whole life. Hold up. Let me rephrase that. Actually, let me point out how that is a perfect opening statement for this piece I’m trying to write about life as a literalist. Everything is wrong with this sentence, if I pick it apart. Not literally everything, though the case could…
two or more autistic people, in collaboration with a clinician, in a non-hierarchical relationship. a good model — building meaning from the inside out — instead of being handed a pronouncement from above.
How do we talk about repair, and who’s capable, in 500 characters?
“All autistic people can learn to be accountable for their actions, and to say otherwise is infantalizing and ableist.” Many variations on this theme are making their way through the platforms currently. While on the surface it appears well-meaning and affirming, it’s worth stepping back and considering the claim at face value, and how it…
Population as Organism: Epigenetics, Neurodiversity, and the Problem of the Individual
The Western neuroscience community has recently taken to saying that autism is genetic — a corrective, and a welcome one, to public claims, made from positions of real institutional power, that environmental exposure is the primary driver of rising diagnosis rates. The rebuttal leans on heritability: family studies put the heritable component of autism around…
continue reading So Autism is Genetic: What Does That Settle?
Articulated as personal responsibility — what I hold myself to, not a standard imposed on others. The online public space serves overlapping, non-competing functions — information exchange, community formation, identity articulation, advocacy, and low-cost contact for people otherwise isolated by geography, access, or circumstance. No single function is the “real” one that the others distract…
continue reading A Neurodiversity-Affirming Code of Ethics for Online Participation
A Reading List in the Spirit of Tōjisha-Kenkyū · 当事者研究
Within Tōjisha-kenkyū lies the potential of rearranging the relationship between the tōjisha (the person with lived experience of the condition being studied) and the specialist — in other words, between experienced knowledge and specialized knowledge. . . . The mutual respect from the tōjisha and the specialist for each other’s knowledge, along with the collaborative…
the etymology of the term ‘autism’ derives from an idea that a person with autistic traits is somehow isolated in a world of their own, that others can’t reach. i would offer that this is exactly wrong, and a projection by an observer with a mindset built from a variety of assumptions that prevents them…
The adaptation-to-pathology pipeline, pt 1
This series explores human traits and behaviors that are pathologized in the modern Western office-industrial complex, with the intent to spark cross-cultural discussion, and reassessment of what it means to be divergent. Two gait strategies, same anatomy, different verdicts—depending on what the ground is asking of the foot, and who’s asking the questions. Toe-walking—prioritizing the…
Many traditional cultures around the world—what I would call emplaced cultures—have sustained populations for millennia, within different watersheds, meeting different needs with different answers. Care distributed through community and across generations, calibrated to the place the community inhabits. Western medicine arrives with its own language—what is right and observable in every case across place and…
I’m a bi-gender person—masc and femme together in parallel unison. Like a Tootsie Roll, a Twinkie, a Ho-Ho, or a KitKat, I have a more brittle, masc outer layer; and a creamy, femme inner core. The femme part of me has been surprised when I have proposed activities to femme friends that I think of…