Neurodivergent dad, CEO of Meta Corporation
by Ryk GroetchenNeurodivergent dad of neurodivergent childrenFacilitator of musical experiences for families with young children Dear Mr. Zuckerberg, I have been a user of your platform since soon after it was released to the public in the mid-2000s. I’m older than you: you were born the year I should have graduated from high school. As…
Navigating changing conditions in the nurturing professions
Vocational awe: “the set of ideas, values, and assumptions librarians have about themselves and the profession that result in beliefs that libraries as institutions are inherently good and sacred, and therefore beyond critique.” “graduates overwhelmingly pointed to underemployment issues as a source of unhappiness, including low wages; lack of benefits; having to settle for part-time,…
I’ve read things literally my whole life. Hold up. Let me rephrase that. Actually, let me point out how that is a perfect opening statement for this piece I’m trying to write about life as a literalist. Everything is wrong with this sentence, if I pick it apart. Not literally everything, though the case could…
How do we talk about repair, and who’s capable, in 500 characters?
“All autistic people can learn to be accountable for their actions, and to say otherwise is infantalizing and ableist.” Many variations on this theme are making their way through the platforms currently. While on the surface it appears well-meaning and affirming, it’s worth stepping back and considering the claim at face value, and how it…
Population as Organism: Epigenetics, Neurodiversity, and the Problem of the Individual
The Western neuroscience community has recently taken to saying that autism is genetic — a corrective, and a welcome one, to public claims, made from positions of real institutional power, that environmental exposure is the primary driver of rising diagnosis rates. The rebuttal leans on heritability: family studies put the heritable component of autism around…
continue reading So Autism is Genetic: What Does That Settle?
Articulated as personal responsibility — what I hold myself to, not a standard imposed on others. The online public space serves overlapping, non-competing functions — information exchange, community formation, identity articulation, advocacy, and low-cost contact for people otherwise isolated by geography, access, or circumstance. No single function is the “real” one that the others distract…
continue reading A Neurodiversity-Affirming Code of Ethics for Online Participation
A Reading List in the Spirit of Tōjisha-Kenkyū · 当事者研究
Within Tōjisha-kenkyū lies the potential of rearranging the relationship between the tōjisha (the person with lived experience of the condition being studied) and the specialist — in other words, between experienced knowledge and specialized knowledge. . . . The mutual respect from the tōjisha and the specialist for each other’s knowledge, along with the collaborative…
peers, autists, human companions: lend me your cognitive architecture (ears are not enough). what we now call “autism” originally described a way of thinking that its own framers acknowledged that everyone experiences. If “autistic thinking” is something that everyone experiences, where is the line drawn between “everyone” and the autistic person? Is everyone temporarily autistic…
the etymology of the term ‘autism’ derives from an idea that a person with autistic traits is somehow isolated in a world of their own, that others can’t reach. i would offer that this is exactly wrong, and a projection by an observer with a mindset built from a variety of assumptions that prevents them…
The adaptation-to-pathology pipeline, pt 1
This series explores human traits and behaviors that are pathologized in the modern Western office-industrial complex, with the intent to spark cross-cultural discussion, and reassessment of what it means to be divergent. Two gait strategies, same anatomy, different verdicts—depending on what the ground is asking of the foot, and who’s asking the questions. Toe-walking—prioritizing the…