Articulated as personal responsibility — what I hold myself to, not a standard imposed on others. The online public space serves overlapping, non-competing functions — information exchange, community formation, identity articulation, advocacy, and low-cost contact for people otherwise isolated by geography, access, or circumstance. No single function is the “real” one that the others distract … Read more
A Reading List in the Spirit of Tōjisha-Kenkyū · 当事者研究 Within Tōjisha-kenkyū lies the potential of rearranging the relationship between the tōjisha (the person with lived experience of the condition being studied) and the specialist — in other words, between experienced knowledge and specialized knowledge. . . . The mutual respect from the tōjisha and … Read more
ever since i was young, i’ve felt like i was from a different culture, and was dropped into this one by a stork. somewhere along the way, i decided to stick by this, and honor the integrity of my original culture, and not get too deep into this dominant culture that i still feel like … Read more
peers, autists, human companions: lend me your cognitive architecture (ears are not enough). what we now call “autism” originally described a way of thinking that its own framers acknowledged that everyone experiences. If “autistic thinking” is something that everyone experiences, where is the line drawn between “everyone” and the autistic person? Is everyone temporarily autistic … Read more
I’m a bi-gender person—masc and femme together in parallel unison. Like a Tootsie Roll, a Twinkie, a Ho-Ho, or a KitKat, I have a more brittle, masc outer layer; and a creamy, femme inner core. The femme part of me has been surprised when I have proposed activities to femme friends that I think of … Read more
How Making Sense of My Child’s Cannabis Use Helped Me Understand The Beauty of Human Adaptation Does Domestication of the Human Species Really Represent Our Shared Future on the Planet? My almost-adult child is a gifted and challenged person, navigating the transition to adulthood in post-industrial American society. They’re a systems thinker, who aces every … Read more
Saying that autistic people who question the current paradigm of neurodivergence are seeking proof of a superpower does real harm. Diagnostic criteria are a snapshot. To refer to the snapshot as reality, without considering the hand that crafted the lens it was taken with, and for whose benefit, or what it distorts, cannot be seen … Read more
this is one kind of harm caused by the abled/disabled binary when it is applied as a permanent designation to people: it erases from view the environment that enables or disables a person, and it makes invisible all of the ways that the environment is designed to enable the abled person. it functions to other … Read more
Two people in a boat. One can row, but cannot navigate. The other can navigate, but cannot row. If we view each as a whole, each has both an asset and a liability—each is both abled and disabled. If we view the relationship as a whole, we can describe things differently. If participation and cooperation … Read more