Here’s a bite-sized piece maybe someone can digest and apply across a spectrum of environments (if someone’s mind is flexible enough): There are people sitting next to you (or maybe even you) for whom a click of a button on a website unleashes a host of unexpected sensory and cognitive attacks, in the form of…
To be an autistic person is to be a person with something valuable inside you but to rarely find the right environment where your value is recognized as valuable by people around you.
This is me, speaking from the heart of an autistic person.
If you’ve been following my neurodiversity journey–as I articulate the experience of a person with autism, ADHD, aphantasia, and proprioception hyposensitivity from the inside, along with the other ways i share myself–and you’ve found that the insights I’ve shared connect with your experience, or contextualize something you suspected, realize that sharing these insights is one of the ways I care for my community.
And realize that, as a person with no degrees or qualifications as an advocate other than my lived experience and my inborn gifts, what I share makes no sense in the context of capitalism.
If you find that a person like me is a valuable part of the community, and worthy of support, realize that, within the context of 21st century American capitalism, there’s not much support for people like me, or for the people I advocate for, who often don’t have the gift for articulation that I share with my community.
I could institutionalize myself: pursue an advanced degree that legitimizes my advocacy in the context of capitalism, and in doing so, would need to unplug myself from the community that I move through, and in doing so, become another victim of capitalism – saddled with huge debt, and most likely unable to find an official advocacy position that would pay off that debt in my lifetime.
The care economy is an emerging model for supporting people, things, and processes we’d like to see more of in the world. It is about recognizing the things in our experience that bring us joy, that give us a [wow] or a [yes], and responding to these moments in a supportive way. It’s actually just, well, practicing care, and that’s not new at all. But the language of commerce is transactional, rather than responsive.
The care economy is an emerging model for supporting people, things, and processes we’d like to see more of in the world. It is about recognizing the things in our experience that bring us joy, that give us a [wow] or a [yes], and responding to these moments in a supportive way. It’s actually just, well, practicing care, and that’s not new at all. But the language of commerce is transactional, rather than responsive.
I recognize that I love the work that I do with people so much that I would offer it for free if I was supported–if all of my needs were met. But traditional models don’t allow for that type of responsiveness. I would like to try to move toward a more responsive system, built on trust. Why not?
People who know me can decide if they trust the work I do, and they can choose to support me so that I can do that work, or not. In doing so, they are allowing me to be more myself, and guiding me toward their own needs. I’m the product, in a sense, but since our relationship is based on trust, I’m allowed to do the work I believe, adjusting to the needs that arise, as they align with those who trust me.
We’re at a turning point: we are abandoning the need to evaluate the worth of a person by their ability to engage with capitalism, and adopting the wisdom to be inspired by those who, by their mere presence among us, increase our capacity to care.
“Oh, come on Ryk, you’re being so persnickety with language again. Why don’t you just lighten up and hear what we mean, and not worry so much about how we say it?” Why, thank you for being brave and vulnerable, and for speaking up when you feel the need arise. Here’s the thing: there are…
You see an old man in the parking lot, losing control of his cart, and you’re right there, and your hand instinctively reaches out and stops the cart from rolling, and you pause, just long enough to show safety with your body, and say:
“it’s fine,”
and move on.
And then, a second later, you are standing across from a young woman screaming at her wailing child:
“chill tf out!”
And your body is frozen, except for the heart that pumps as if it is trying to put out a fire. Which it is.
And as you bear witness, you wish that it was this cart your hand could instinctively reach out and stop from rolling.
I post a lot about politics on Facebook and my personal blog, and I have many strong and specific opinions. I also have joined many special interest groups on social media. It would never even occur to me to share my political opinions in these special interest groups, but I understand why some might.
I’m also neurodivergent, and I post a lot about that. Again, if I wanted to start a hyperlocal neurodivergence group, I feel empowered to do so, and wouldn’t consider posting in my local community group (though I might introduce myself there and invite folks to join my group if they like).
As a neurodivergent person, I have a lot of practice stepping on various boundaries that I did not understand intuitively. And, I understand a wide range of reactions to being reminded of a boundary.
I post a lot about politics on Facebook and my personal blog, and I have many strong and specific opinions. I also have joined many special interest groups on social media. It would never even occur to me to share my political opinions in these special interest groups, but I understand why some might. I’m…